Key Takeaways
- After a multiple myeloma relapse, there are still various treatment options available. These may include different medications than previously used, stem cell transplants, or newer therapies such as T-cell engagers and CAR T-cell therapy.
- Talking openly with your healthcare team about these options and possible side effects is crucial for managing your treatment journey effectively.
- Support from family, friends, and organizations such as the American Cancer Society and the International Myeloma Foundation can provide valuable assistance and resources during this time.
News of a relapse may feel like a real blow after a period of remission, but being kind and patient with yourself, and taking time to process the information, is essential to both your physical and mental well-being.
It can also be reassuring to know that supportive resources are available. These and some other practical tips may make the next part of your treatment journey more manageable.
A relapse can happen for many reasons. Understanding how and why this relapse has occurred can help you think practically about the next steps.
Current treatments for myeloma can’t remove every myeloma cell in the body. Some cells may remain in the bone marrow and, over time, begin to multiply and clone themselves. This is how relapse occurs.
Because multiple myeloma affects each person differently, discussing what a relapse means for you is an important part of your care. You may find it helpful to bring someone with you to appointments and prepare a list of questions you’d like your doctor to answer.
Your healthcare team will use different tests to monitor you for signs of myeloma relapse. These
They’ll then review your treatment options with you. Your first-line treatment may include a combination of three or four different medications.
Next steps may involve a
Having open and honest conversations with your healthcare team can help you feel confident in your treatment plan and the support resources available to you.
With new or adapted treatments may also come new side effects to manage.
All multiple myeloma medications come with possible side effects. Your healthcare team will help explain the risks, how to manage common side effects at home, and who to contact in an emergency.
Be sure to keep the most important information on hand so you can easily refer to it if needed. This could include the package insert information for your medication and the hospital’s contact numbers.
There are many resources available to you and your loved ones that can help you through a relapse. While the hospital will likely share some local information, there’s plenty of information online.
American Cancer Society (ACS) and American Society of Clinical Oncology (ASCO)
The ACS and the ASCO have combined to provide support to people with all types of cancer.
You can find a wealth of
International Myeloma Foundation (IMF)
IMF is the world’s largest myeloma organization, with more than 525,000 members worldwide.
The organization funds research and educates people about multiple myeloma, with 160 support groups across the United States. You can find local groups by entering your ZIP code.
You can also contact the IMF directly by calling toll-free at 800-452-2873 from the United States and Canada.
Multiple Myeloma Research Foundation (MMRF)
The MMRF is a nonprofit organization that offers a range of resources on multiple myeloma. It helps people find patient education services, treatment centers, and financial aid.
The site offers a directory of national patient and caregiver support groups, arranged by state, along with a myeloma mentor program that provides information to empower and support the care journey.
Other support groups for multiple myeloma
Getting online-only support can be helpful to those living in rural areas, for those too unwell to travel, or to those who prefer anonymity throughout treatment.
Staying engaged in your follow-up and monitoring appointments is essential for managing multiple myeloma.
Because the condition is a chronic, relapsing-remitting type of blood cancer, it requires long-term care, starting when you’ve had your first treatment.
Your healthcare team will consistently monitor you to assess treatment efficacy, check for relapse, and help you manage treatment side effects.
Make sure to keep your appointments. This is the most important way to monitor your progress. It will usually involve blood, urine, and imaging tests, which can all be used to detect relapse.
During appointments, you will also be able to report on symptoms, side effects, and your overall well-being. Don’t be afraid to report any
Questions to ask a doctor about a myeloma relapse
- What are my next treatment options?
- How often will I need to have the new treatment?
- What are the most common treatment side effects?
- How much will my new treatment cost?
- Is there any financial support available?
- Where can I find further myeloma resources?
- Who should I call if I have nonurgent questions?
- Who should I contact if I have a medical emergency?
- Is there any emotional support available for me, my family, and my caregivers?
Moving forward from a multiple myeloma relapse often involves support from family, friends, caregivers, and your healthcare team. There are also steps you can take to make sure your treatment journey goes as smoothly as possible.
Open and honest conversations with your doctor can help you understand your treatment choices and feel more confident in your care plan. Keeping your appointments and strictly following the treatment plan you and your team agree on are also important parts of ongoing care.
Take advantage of the support groups and resources available locally through nonprofits and other cancer organizations. They can provide some valuable experiences with others in a similar situation. Overall, staying informed and connected can help you navigate the road ahead.